Health Lab Fragile X Study Recruitment

Do you care for a person over the age of 15 who lives with Fragile X syndrome? If so, we invite you to participate in a University of Chicago survey. We hope, through this survey, to draw upon your insights as a caregiver to improve services and care for other families. Many of our questions focus on services and strategies you have found helpful when your loved-one with Fragile X is dealing with difficult feelings, and may, as a result, engage in aggressive behaviors. The Principal Investigator for this project is Harold Pollack. Dr. Pollack is the Helen Ross Distinguished Service Professor at the University of Chicago’s Crown Family School of Social Work, Policy, and Practice. He is faculty co-director of the University of Chicago Urban Health Lab. The primary contact for questions regarding the survey is Nicole Summers of the University of Chicago Urban Health Lab. 


15 October 2025